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Cerebra is a unique charity set up to help improve the lives of children with neurological conditions through research, information and direct, on-going support. Included in their support services :Information and advice over the phone and via their website, face to face support through regional officer (help with form filling, letter writing completing the DLA forms, meetings and location specific activities), a sleep service for advice and support on sleep issues, grants for up to 80% of the cost of some equipment and services, postal lending library, telephone counselling service, a holiday home, a wills and trust scheme, an innovation centre who design bespoke equipment and a monthly e-newsletter.
Contact a family is a national charity for families with disabled children. They provide information, advice and support through a freephone helpline and website including parent resources, medical information, workshops and information sessions and their SENDirect service which is ad educated website looking at SEND.
Council for disabled children is the umbrella body for the disabled children’s sector in England. They influence Government policy, work with local agencies to translate policy into practice and produce guidance on issues affecting the lives of disabled children.
Equality Advisory and Support Service offers online advice, live chat, support and resources as well as a helpline if you believe you have been unlawfully discriminated against. The service is aimed at individuals who need expert information, advice and support on discrimination and human rights issues and the applicable law, particularly when this is more than advice agencies and other local organisations can provide.
IPSEA Independent Parental Special Education Advice. IPSEA is a charity which covers the whole of England. It does not accept any funding from government or local authorities. They provide families with independent information, advice and support based on the law. The website has free downloadable resources including letter templates, faq’s and a jargon buster. Families can complete an online Information Service form to get a response clarifying legal position and signposting to possible support. They also offer an advice line and a tribunal advice line.
Local Offer Every local authority has to publish and provide details of what services and provision they expect to be available in the area for children and young people with SEN and or a disability, this is their “Local Offer”. The Local Offer should include clear details of the expected provision in Education, Health Services, Social Care Services, Training, home to school/ college transport arrangements and available provision for assisting young prepare for adulthood and independent living. Services outside of the LA’s geographical area which their children and young people access should be included also.
Mencap support people with learning disability and their families and carers. They support people with learning disability with education, employment and residency. Other services include personal support services, wills and trust service, business support services and training. They have Mencap Direct which is an advice and information line and has a translation facility if English isn’t your first language.
Rochdale Family Service Directory is a collation of information on events, clubs, child care, services, support, education and early help open to all families within the authority. Rochdale’s Local Offer is included too.
Scope is a charity that supports disabled people, their parents and carers and professionals. They have a free confidential helpline and online communities online communities. They offer support, practical help and guidance and information on a wide variety of subjects and also have an online benefits checke
SEN Code of Practice This code contains the legal requirements and statutory guidance for education providers, local authorities and health and social service providers.
Special Needs Jungle is a website and social media based hub of resources, information, articles, news and research to support parents and carers of children with SEN and or disabilities and health conditions to help them on their SEN journey.